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104.1 The caregiver experience in amyotrophic lateral sclerosis (ALS): a mixed-methods study to examine the lived experience of caring for people living with ALS and to develop a novel ALS Caregiver Impact Questionnaire (ALS-CIQ) William Nowell 1 , Nadine McGale 2 , Oren Levy 1 , Sarah Wilding 2 , Phoebe Heinrich 2 , Nick Patel 1 , Jinsy Andrews 3 , Diana Rofail 1 1 Regeneron Pharmaceuticals, Inc., Tarrytown, New York, USA, 2 Modus Outcomes, Cambridge, Massachusetts, USA, 3 Department of Neurology, Colombia University, New York, USA Journal of Patient-Reported Outcomes 2026 , 10(Suppl 1) :104.1 Aims This study aimed to develop a conceptualization of the personal experience of caregivers of people living with amyotrophic lateral sclerosis (pALS), and a novel instrument to assess caregiver impact

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Johnson, MD, Chief Medical Director of CenExel Metabolic and Principal Investigator, and Margot Witteveen, MS, RDN, LD, Research Registered Dietitian Nutritionist at CenExel Decatur, highlight why monitoring nutritional adequacy is critical in metabolic studies

Real-world results often mirror the trials

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